tick...tick...tick....tick

By JAMES MARTIN   Thursday, February 28, 2013 - 8:43 p.m.

My primary intent with this blog is, and has been, to share my journey with ALS. Sometimes my essays have diverged on tangents that amuse or interest me, and hopefully you. Other essays have dealt with the faith aspect of how I am confronting my illness and others have chronicled the progression of my disease. This essay is different; here I share a glimpse at the psychological impact ALS has on me. It is not meant as a pity party or an invitation for sympathy. I have vacillated on posting this essay, but ultimately decided it is part of the disease and therefore should be part of the blog.

The other day, we ventured out to get a passport for our daughter for an up coming trip. Unfortunately the weather was not kind, the roads were poor and our speed slow, but we made it. During our time there, the snow continued to fall. And when we pulled out of our parking spot we got stuck in the drifted snow.

Maggie and I got out to try and dig out as Kathy tried to rock the vehicle, all to no avail. Because I was of little use, I abandoned the effort in search of a snow shovel. During my absence, some good samaritans were able to push the vehicle into the clear. Kathy and Maggie then picked me up and we slowly made our way home. I was then, as always now, simply a passenger along for the ride.

This was a difficult trip for me. One of the worst parts of my illness is dealing with the mental and emotional realization of my limitations. I was of no use in this situation and to top it off I was stuck in the passenger seat with bad road conditions. Both situations were demoralizing. I felt helpless, out of control, and frustrated; all emotions that I experience with greater frequency as my disease progresses.

Fortunately these emotions do not last long, but depression is a common collateral disease associated with ALS. I am very conscious of that fact and know what to look for. So far I have been able to deal with these feelings in the typical male way; I ignore them and they eventually go away. Tick...tick...tick....tick...tick..

I know that the psychological impact is simply a small part of my journey, a journey more difficult than many but not nearly as bad as others. I am not in pain, and primarily still independent at home; most importantly I have a loving family supporting me. For these things, I am truly blessed.

Jim is am an attorney and graduate of Gonzaga University and Marquette Law School. He lives in Spring Prairie near Burlington. He has been in private practice for 17 years. He is in the process of closing his practice due to a diagnosis of Amyotrophic lateral sclerosis (ALS). He his married with 6 kids. Jim is a community blogger and is not a part of the Gazette staff. His opinion is not necessarily that of the Gazette staff or management.

reader COMMENTS
Click here to view reader comments
(7)
BostonBill
Mar 2, 2013 at 9:51 p.m.
Suggest removal

Mr. Martin,......This may sound silly, but YOU ROCK. You and your family are in my prayers.

comet65
Mar 2, 2013 at 7:35 a.m.
Suggest removal

Jim, thank you for sharing your journey and your faith. My wife knows you well through her position at the courthouse and told me about her interactions with you. She commented how you would always finish the conversation that you were 'truly blessed'. I haven't met you personally, but came close at a courthouse event. But that doesn't matter. Your story and your faith has reminded me of my once strong faith that has waned under the experiences of life. My faith has never left me, and your story has renewed and strengthened it again, and for that, sir, I am truly blessed. Thank you and thank God for your life. You are a wonderful man, father, and husband. God bless you.

saxcat70
Mar 1, 2013 at 2:34 p.m.
Suggest removal

For everything your horrible disease has taken from you, it has obviously replaced with the gift of appreciation.

vnvet7071
Mar 1, 2013 at 9:56 a.m.
Suggest removal

Don't give up the fight yet Jim , your blog is helping a lot of people.

jas
Mar 1, 2013 at 9:03 a.m.
Suggest removal

God Bless you, Jim, on your journey. Thank you for sharing this post with all of us, as I'm sure it was difficult for you.

lovemycountry
Mar 1, 2013 at 7:55 a.m.
Suggest removal

Jim, thank you for another insightful blog entry.

meemaw
Mar 1, 2013 at 6 a.m.
Suggest removal

God bless you Jim Martin. Thank you for your genuine, sincere, sharing as you live thru this terrible disease. So glad you are not suffering physical pain. Praying for you & your dear family.

Before you post a comment, consider this:

Note: GazetteXtra.com does not condone or review every comment. Read more in our User Policy Agreement
  • Keep it clean. Comments that are obscene, vulgar or sexually oriented will be removed. Creative spelling of such terms or implied use of such language is banned, also.
  • Don't threaten to hurt or kill anyone.
  • Be nice. No racism, sexism or any other sort of -ism that degrades another person.
  • Harassing comments. If you are the subject of a harassing comment or personal attack by another user, do not respond in-kind.  Hit the "Suggest Removal" button on offensive comments.
  • Share what you know. Give us your eyewitness accounts, background, observations and history.
  • Do not libel anyone. Libel is writing something false about someone that damages that person's reputation.
  • Ask questions. What more do you want to know about the story?
  • Stay focused. Keep on the story's topic.
  • Help us get it right. If you spot a factual error or misspelling, email newsroom@gazettextra.com or call 1-800-362-6712.
  • Remember, this is our site. We set the rules, and we reserve the right to remove any comments that we deem inappropriate.

Post Comment

Commenting requires registration.

Username:
Password: (Forgotten your password?)

Comment:

ADVERTISEMENT